Cerebral Adrenomyeloneuropathy

Walking the Rails

This one is not such a cheerful installment. I am aware that I promised that the content of this website would be optimistic and upbeat. Nonetheless, as we all know, the potential for cerebral involvement is part of the bargain. I do not plan to dwell on it, but it is a big deal for those afflicted. It would be irresponsible to pretend it did not exist. I am not at all an authority figure on this topic, I can only share the interactions with my brother and cousin. I am guessing that everyone’s story could be far different.

My brother Todd and cousin Chris both appeared to have the nasty variant- AMN with cerebral involvement. Seemingly normal during childhood, these guys developed novel behavior patters as they grew older. I spent more time with Todd, so I can use his demise as an example. At first, he just seemed…

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