In April, 2005, I was the fourth to be selected for the Lorenzo’s Oil AMN study at the Kennedy-Krieger Institute. I eagerly traveled to Baltimore and underwent all of the pre-study poking and prodding. My blood was drawn, I got an MRI to assess the extent of demyelination in my neck, the whole motion analysis gamut and a series of cognitive function tests to assess my hand-eye coordination and memory. There was even one experiment where they hooked electrodes to my scalp, then shocked my toe. The idea was to see how fast the electricity could traverse the length of my body. The better the nerve, the faster the electrons would move, I suppose. I expect that my nerves were not so good- the technician was unable to detect anything at the scalp level.
Despite the faulty nerves, I was in good enough shape to enroll. I had no idea…
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2 thoughts on “The Trial Begins!”
Your poking a prodding sounds like my week at the Mayo! they did a number on me but after two years and many doctors’s found out what my heart problems were. So glad you had somewhere to go.
Yes, I think luck, sadly, plays a role!
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