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Why You Should Never Stop Fighting

Last weekend, I went to Michigan, with my boyfriend and I learned a very important lesson. My boyfriend and I were walking on a boardwalk while the sun was setting. The sun was in the process of dipping into the cool blue lake. The air was warm but the sight was breathtaking. As we were…

via Why You Should Never Stop Fighting — Life with an Illness

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Chronically Fearless — Life with an Illness

I have some extremely good news! After a lot of hard work, dedication, and long nights working- I have officially opened my new online retail store, Chronically Fearless! Chronically Fearless represents strength, the will to never give up, and of course being fearless. The goal of my brand is to inspire others, spread awareness, and…

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My 3 Year Chronic Illness Anniversary — Life with an Illness

Around this time 3 years ago, my life changed forever and I didn’t even know it at the time. I remember the day it happened like it was yesterday. I was a very active person. At the time I was attending college- where I had just gotten accepted into the respiratory therapy program ( something […]

via My 3 Year Chronic Illness Anniversary — Life with an Illness

Pushing Through When You Have No Energy Left

A chronic illness will drag you down. At times, you feel like a walking zombie. You have to force yourself to get out of bed and accomplish a task. It can be extremely difficult to run on no energy. Pushing through when you have no energy left is the only choice you have.

  • Getting through a day when you have no energy

When you have zero energy your body can feel like it’s completely holding you back. It’s almost impossible to get anything accomplished. What I like to do is the spoon theory. The spoon theory is a way to save energy. Each spoon represents a unit of energy and you can only use those amount of spoons for each day. If you run out, you can borrow one from another day. This really helps when it comes saving your energy and not over working yourself.

  • Don’t be afraid to take breaks

Don’t forget to take little breaks throughout the day. This will help you from not over doing it. I was afraid to take breaks in front of people for the longest time, because I tried to keep up with them. I’ve learned I cant keep up with everyone, and that’s okay. They don’t have a constant war going on in their body, you do. There’s nothing wrong with pacing yourself and taking care of your body. When you need to take a break, take a break.

  • Find motivation or inspiration to get you through the day.

When you are exhausted and hurting and you feel like you just need to give up, find motivation to keep you going. Find something or someone to inspire you. It could be your mom, a friend, a Quote, or a video; whatever you find that inspires you, let that motivation drive you. Don’t give up, and keep pushing forward. You’ve got this. ♡

We Bought a House!

I’m sorry I’ve MIA lately when it comes to writing. I’ve been really busy and took some time to take care of my health, and undergo new treatments. I do have some incredible news; after being sick for 3 years and dating my boyfriend for a year and a half, my amazing boyfriend and I mustered up the courage to buy a home.

It was a long and stressful process, and with being ill, I had to constantly pace myself. I couldn’t have done this process without my family, my boyfriend, and his family; and its truly a dream come true to be able to live in our dream house.

We are extremely happy, and excited to see where this journey takes us. Heres to the start of a new chapter, together.💕💕

The post We Bought a House! appeared first on Life with an Illness.

A Chronic Illness Doesn’t Define You

A chronic illness will change the way you live life,

It can make you feel like you’ve been stabbed in every joint by a knife.

It can change how you view things, even your mindset,

You tend to feel like you’re forever trapped in a drowning net.

Your relationships will start to change,

Your life just feels like it has been rearranged.

A chronic illness can change a lot,

But don’t ever allow it to define who you are, no matter what baggage this illness has brought.

You are still you, just stronger,

This illness will not have a hold on you, not any longer. ♡

This post was first seen on lifewithanillness.com

An Open Letter to Lupus

Dear lupus,

You have changed my life. You turned my life, and my parents life upside down. You know, it was very hard to diagnose you. It took 2 years. That’s 24 months- 730 days- 17520 hours- 1051200 minutes- 63072000 seconds of my life spent trying to diagnose. For a while, I was in a really dark place. The darkness comes and goes, because of the trials you’ve put me through, and continue to put me through. I have been through tortuous trials to diagnose you- countless amounts of blood work, scans, hospital stays, steroids, and doctors appointments. I also had to make arduous decision to put school on hold, stop working, and quit running half marathons (which were my passion). You’ve put me through a lot, lupus. I blamed you. I blamed myself, wondering what I ever did to deserve this. You have caused so much hurt and pain in my life. There were doctors who didn’t understand what you were, so they turned me away. I have had friends and doctors who gave up on me. You tried to break me down, lupus. You took everything from me. But you know what? I am a warrior, and a survivor. I have certain friends and family who have only rallied against me. I have learned who is there for me, when I’ve needed them the most. I have a stronger bond than ever with my parents. I have discovered my passion and love for writing, which I wouldn’t have if it wasn’t for you, lupus. I am stronger, because of you. At times, I feel like you have only broken me, but you’re only making me stronger. So lupus, you may have changed my life, but if I had the chance to go back and redo my life or change experiences, I wouldn’t. You have made me into the person I am today. So, I may hate you, and hate the pain you bring me- I am also very thankful for the mindset you’ve given me, the strength I’ve developed, and the bonds I have formed with those around me. I know you will be something I will forever have to deal with, I also know there are positive attributes to having you in my life. Just know, you will never break me.

Sincerely,

This lupus warrior ♡

This post was first seen on lifewithanillness.com

Easy Halloween Wreath Suitable for Chronically Ill People

I decided to get into the holiday fun with this adorable wreath! Having several chronic illnesses and POTS, I always have extreme fatigue and my hands become numb after a while. There are a lot of things I am not able to complete but I decided to get involved in the Halloween spirit and make a craft! Remember even though life can be hard, and you’re hurting it’s important to still have fun, and do things to get your mind off of things. I loved this craft and it makes you feel good to accomplish it! Anyone can do it however, for those with a chronic illness and get tired easily this is perfect for you! It was inexpensive, I did it on my couch, and it only took an hour! It didn’t overly tire me out and didn’t make my hands go very numb. I did take several breaks, so the break option is completely up to you! It is an easy project to have a lot of stopping points, therefore, it allows you to take breaks whenever. I bought all of the products at Hobby Lobby, they have a large and fun supply of Halloween options! Lets get started!

Supplies needed

12 Inch round Styrofoam Wreath

Black 6″ Glitter Tulle

Orange 6″ Glitter Tulle

Scissors

A Little Halloween Sign to go on your Wreath (optional)

Hot Glue Gun * Only if you decide to put a sign on it (Optional)

Directions

  • I find it easier to cut a lot of strips first, cut an arm length strip. Fold the strip in half and put the folded tulle under the wreath.



  • Grab both ends, so the tulle is wrapped around the Styrofoam. Grabbed the two ends and pull through the loop, and pull tightly.



  • Make sure the knot is on the outside portion of wreath. The loose end of the tulle needs to stick straight out to provide the tutu wreath look. Where the knot is, make sure you fan out some of the tulle to cover up the white wreath.
  • Repeat steps 1. and 2 until you fully cover the wreath. Fluff out tulle. * NOTE* If there are some tulle that is longer than others you can always trim the longer piece.

  • Optional* If you want to put a sign on it, hot glue were you want the sign and stick it on there. Make sure it is very secure on there.


That’s it! Super simple and also very cute! It’s not super tiring and it gives you something to be proud of! Leave me a comment if you’ve done any Halloween crafts or tell me what your favorite Halloween activity is! I can’t wait to hear from you! Good luck and Enjoy!

The post Easy Halloween Wreath Suitable for Chronically Ill Peopleappeared first on Life with an Illness.

Meet Chance- Future Service Dog in Training

Having POTS has really changed my life. I haven’t been able to walk without assistance for over a year, due to being extremely dizzy and uncontrollable chronic migraines. I also pass out a lot. My family and I made the executive decision to get a puppy and get him trained to be my service dog! The service dog will be able to assist me in public, and also be trained for when I’m home alone to be able to help me when I pass out; or incase of an emergency.

To be honest, I was nervous to even think about getting a service dog. I was afraid when I take him out in public people would judge me or stare. I realized that if a service dog will give me some independence, and be there to help me when needed- then I don’t care what people will think. I decided I need to do what’s best for me. I am home alone a lot, because I work from home. Due to passing out a lot and being dizzy, my family worry about me a lot when I’m alone and also try not to leave me alone for very long. A service dog will be able to help me in case of an emergency and also will be there when I need stability when I walk. I learned instead of caring what others think, I need to get out and live my life and not base my life on others opinions.

After searching for weeks for the perfect dog for me, I found one- a golden retriever. His name is Chance, and my boyfriend and I fell in love with him instantly!

He is super sweet, and we developed a bond right then and there.

When we first brought him home, we felt like we were bringing home a newborn home from the hospital. We

were all nervous on how it would go, and how he would fit in with our other dog and cat. It actually went better than I ever could have imagined.

Chance and my cat- Joey are now forever friends, and Max leads Chance like a big brother around the house.

He is a very playful puppy, and he loves to cuddle.

We put him in puppy class, so he can associate with other puppies and learn basic commands. He is a super quick learner, but he gets distracted easily. He has graduated puppy class and just started the intermediate class.

Chance is teething and definitely loves to chew up shoes! Fingers crossed that habit breaks soon! He tends be become a little crazy, but we can all use a little crazy in our lives. It has really been fun watching him grow up, and develop a personality. I can’t wait for our bond to become even closer as he grows.

This has been an unforgettable journey so far and I look forward to him being able to help me; so I can become more independent, and can go even just to the grocery store by myself. Chance has been the missing piece in my heart I never knew I was missing. My boyfriend and I have truly become a little family with our puppy and its been heart warming. I look forward to sharing my journey with you all.

The post Meet Chance- Future Service Dog in Training appeared first on Life with an Illness.

What to Pack in your Bag When you Travel with a Chronic Illness

A chronic illness can change your life. It can bring a lot of baggage into your life. In order to survive a long busy day, you may need medication, or an ice bag for your joints. Traveling with a chronic illness can be extremely arduous; because you don’t want to forget anything you may be in dire need of. Here are ideas of what to pack in your bag when you travel with a chronic illness.

  • All of your medication.
  • A pillow and blanket.
  • Drinks in a cooler. *Lots of water.*
  • If available/needed compression socks/stockings.
  • Chapstick.
  • Biofreeze.
  • Clothes.
  • Ginger ale (in case you get car sick/ nauseous).
  • Snacks.
  • List of medications (in case you don’t memorize the order/times of your medications).
  • Phone and charger.
  • Essential oils. (I bring my essential oil bracelet with me when I travel.)
  • A book/kindle/word search/ magazine.
  • If available/needed weighted blanket.
  • Ice bag/ heating pad if needed. ( I use ice for my joint pain & both for my migraines.)
  • A positive attitude, and a never give up mindset. ♡

The post What to Pack in your Bag When you Travel with a Chronic Illnessappeared first on Life with an Illness.

You Have a Diagnosis, Now What?

You receive a diagnosis, which is a great thing. I know, sounds absurd that it could be considered a relieving thing to hear. For those with a chronic illness, you’ve been suffering for possibly months maybe even years. At this point you want the diagnosis. So you can work on your health to get into remission, however, receiving it can also make you feel overwhelmed. A thousand thoughts will go through your head all at once. You try to think about what the next step is for you. All you want is to get better, but sometimes you just don’t know what you need to do. Here is a list of what to do next after you get diagnosed.

  • Take a deep breath.

Now I know this seems a little obvious, however, after years of suffering, countless appointments, endless testing, and hospital stays the search is over. You can now put to rest all of the doubts people had that you were “faking” it. You now have a reason why your joints make you feel like you’re 70, when you’re actually 21. You can now put your mind at rest of feeling miserable, but the reason was unknown. You now have a name to blame the pain on. Take a deep breath, the detective work to figure out what you have is finally over.

  • Study, study, study.

I’ve learned when you are diagnosed, your mind can be all over the place. You have a lot to think about. The best thing you can do is study everything there is to know about what you’re going through. There is no such thing as knowing “too much” about your illness. The truth is, with most chronic illnesses there will be limitations, diet preferences, and learning to adjust to your new life with your diagnosis. When they give you a prescription, it is in your best interest to study your medication. Learn the side effects, the benefits, and what to watch for incase of a reaction.

  • Find support groups or a therapist.

I know some people aren’t keen on the idea of seeing a therapist. I wasn’t, but when you have gone through agony, pain 24/7, and your life changed in an instant, it is good to talk to someone. You’re under enormous amounts of stress, and the more you keep it in, the more it will build up. It truly is okay to ask for help. They really are there to listen to you, like a friend. I have learned techniques by going to therapy, and just by talking to someone, it honestly has helped me cope with being ill. I also recently joined a POTS support group recommended by my doctor, and it was the best decision I have made during my illness journey. It is always nice to talk to a friend or love ones, but you will always have the feeling that they don’t fully understand. Support groups are amazing in the fact that, there are people going through just about the same thing you are going through. Check online to see if there is a support group for your illness locally. They understand you’re hurting and they are there for you to help each other.

  • Inform your love ones what you are going through.

I know this may seem strange, because you tell your love ones most things. I have learned that with a chronic illness you tend to hide some aspects of your life, due to not wanting them to see you struggle, bother them, or always tell them bad news. To be honest, it’s important to tell them what is going on to keep them in the loop. For example, I hid a situation where I was constantly throwing up for a while, and having migraines from my love ones because I didn’t want to bother them about my struggles. So they thought I was doing okay and would always ask to hangout, but I had to cancel and it made them think I was blowing them off. It wasn’t the case at all. When I explained what I had been going through, they absolutely understood. Its important to keep your friends and family updated, the more included they are, the more support you will have. They are there for you, and just want the best for you.

  • Don’t give up.

They are finally starting to understand what you are going through and finding some answers. I know this life we have been given is tough but you are tougher. Hang in there and show not just others, but yourself how strong you are. You will get through this, don’t stop fighting.

For those with a chronic illness, you’ve been suffering for possibly months maybe even years. Remember, I know this life we have been given is tough but you are tougher. You deserve as quality of a life as the next person. Stay strong, stay positive, and never give up.❤

*I’m not here to treat, diagnose, or go against Dr. Orders. Just here to provide support comfort and help. *

This post was first seen on lifewithanillness.com

Mystery Blog Award Nomination!

Im so excited to be nominated for the Mystery Blogger award! I want to thank Kaitlin, for nominating me! I really appreciate you for considering me! I love everything this award represents, and I am so thankful to be nominated! Please make sure you check out her blog here! I love reading her posts and you will too! Now, let’s get started!

*This award is “an award for amazing bloggers with indigenous posts. Their blog not only captivates; it inspires and motivates. They are one of the best out there, and they deserve every recognition they get. This award is also for bloggers who find fun and inspiration in blogging and they do it with so much love and passion.”*

HERE ARE THE RULES:

• Thank whoever nominated you and include a link to their blog

• Tell your readers three things about yourself

• Nominate bloggers you feel deserve the award

• Answer the questions from the person who nominated you

• Ask your nominees 5 questions of your choice, with one weird or funny one

• Notify your nominees by commenting on their blog


3 THINGS ABOUT ME

  1. I just got a puppy and I’m in love with him! He’s a 4 month old golden retriever, and will one day become my service dog. He’s a very happy and lovable furbaby! I can’t wait to share my journey with him, to y’all!
  2. I am allergic to seriously everything! I am gluten free, dairy free, and soy free! Dont ever let me cook dinner for you, unless you like very healthy food!
  3. I love ice cream! I could seriously eat ice cream for every meal and never get tired of it!

QUESTIONS FROM KAITLIN:

  • Why did you decide to start your blog?
  • I started my blog because I became chronically ill. I got in a very very dark place, and I knew I could either let my illness take over me, or I could use my illnesses as a tool to help others. All I ever wanted to do was share my journey to help others in my situation, share tips, let them know they aren’t alone, and also spread love and positivity.
  • What is your favorite breakfast food?
  • Pancakes and syrup! Yum!
  • Who motivates you? Or is your inspiration?
  • My mom is my biggest inspiration. She is the strongest human I know, and I’m so lucky to have such a positive and inspirational woman to look up to.
  • Do you have a favorite book or movie?
  • My favorite movie of all time is Sweet Home Alabama, and my favorite book is Fault in our Stars!
  • If you could travel anywhere in the world, where would you go? And why?
  • Australia! I have always wanted to go there! It looks absolutely beautiful, and I really want to see a kangaroo!
  • My questions for my nominees:

  • Who is one person in your life you look up to?
  • Do you like cookies or cake better?
  • What made you decide to start a blog?
  • If you were given 1 million dollars, how would you spend it?
  • What is one place you want to travel to?

My nominees

Thank you again for nominating me, Kaitlin! To my nominees, I cant wait to read your answers! I hope everyone has a fabulous day! Never give up, and always stay positive!♡

This post was first seen on lifewithanillness.com

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~PAIN~

Pain has a way to rope and lasso you in, All you want to do is scream and escape your skin. In this tortuous and arduous situation- life has basically come to a hault, Never believe that this obstacle has ever been your fault. For, you will overcome this horrifying pain, Utilize the strength your…

via ~PAIN~ — Life with an Illness

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The Positive Side of Having a Chronic Illness

Having several chronic illnesses, I’ve learned that with a positive outlook even during the hardest times you can still find the good in situations. Everyone endures a difficult trial, it’s the way you look at it, that determines how you will get through it. There are a million negatives of having a chronic illness, however,…

via The Positive Side of Having a Chronic Illness  — Life with an Illness

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My Journey with a Chest Port

About 3 months ago, I made a really great decision. I decided to get a chest port. I was doing an infusion for my POTS once a week, now twice a week. I have very difficult veins and on an average, I usually get poked about 4-5 times before they find a good vein. When…

via My Journey with a Chest Port — Life with an Illness

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Pushing Through when your Chronic Illness is Pulling you Down

A chronic illness is life changing. It changes your life totally, and completely. It changes you. The pain you have to endure, and the constant pressure of knowing you are sick, you are different, and you have restrictions is heartbreaking. A chronic illness can really rock your world. The hard part is pushing through, when…

via Pushing Through when your Chronic Illness is Pulling you Down — Life with an Illness

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The Diagnosis- Poem

The moment you hear your diagnosis for the first time, your breath that you lost, is something you try to find. You finally figured out why you’ve been suffering for so long, you try not to react, you just strive to stay strong. Tears unwillingly welt up in your eyes, all you want is a…

via The Diagnosis- Poem Style — Life with an Illness

“You Don’t Look Sick”

An invisible illness is not only difficult to deal with physically but it’s also mentally. An invisible illness is defined as not immediately visible. When you’re hurting and miserable the last thing you want to hear is “well, at least you look great, you don’t look sick”. Here is everything you need to know as…

via “You don’t look sick” — Life with an Illness

Tips for Going Gluten Free

So, you’ve just heard you have celiacs disease, or a gluten sensitivity. When you are told to cut out gluten it can become extremely overwhelming. You look in your cabinet and literally everything seems to have wheat in it. So, what do you do next? Here are tips for going gluten free. If you cut…

via Tips for going Gluten Free — Life with an Illness

My 2 Year Anniversary of Being Chronically Ill

My journey officially began 2 years ago. Wow, it’s truly insane to think I’ve been chronically ill for that long. It’s strange to think after countless amounts of tests, Doctors appointments, and trials of treatment; I have been going through this for 2 years. I have experienced more in 2 years, than some people go…

via My 2 Year Anniversary of Being Chronically Ill — Life with an Illness

Having to Drive Out of State to a Clinic for Treatment

Having a chronic illness, or a rare illness can be stressful. Not every doctor has heard of all the different types of illnesses, let alone knows how to treat them. In most cases, for instance, in my case I have to drive out of state to a Clinic for treatment. Unfortunately, going to an out…

via Having to Drive Out of State to a Clinic for Treatment — Life with an Illness

All about Lupus

Lupus is an autoimmune disease, where your immune system attacks your own tissue and organs, mistakenly. According to Womenshealth.gov, 9 out of 10 adults with lupus are women. Unfortunately, there’s no cure, but it can be managed by a doctor and medication. Lupus causes inflammation in the joints, and organs. It also comes with a…

via All about Lupus — Life with an Illness