Fibromyalgia Thoughts #4 Living Without A Flair —

Vacuumed kitchen and dining room. Mopped kitchen. Applied cuticle cream twice. Vacuumed part of the living room, still need to clean the floor. Potted two house plants. Enjoyed a candle for a few minutes. Emptied dishwasher. Woke up 4:00 A.M. with the puppy. Haven’t taken a nap. I cleaned up but no shower, those […]

Fibromyalgia Thoughts #4 Living Without A Flair —

Pushing Through When You Have No Energy Left

A chronic illness will drag you down. At times, you feel like a walking zombie. You have to force yourself to get out of bed and accomplish a task. It can be extremely difficult to run on no energy. Pushing through when you have no energy left is the only choice you have.

  • Getting through a day when you have no energy

When you have zero energy your body can feel like it’s completely holding you back. It’s almost impossible to get anything accomplished. What I like to do is the spoon theory. The spoon theory is a way to save energy. Each spoon represents a unit of energy and you can only use those amount of spoons for each day. If you run out, you can borrow one from another day. This really helps when it comes saving your energy and not over working yourself.

  • Don’t be afraid to take breaks

Don’t forget to take little breaks throughout the day. This will help you from not over doing it. I was afraid to take breaks in front of people for the longest time, because I tried to keep up with them. I’ve learned I cant keep up with everyone, and that’s okay. They don’t have a constant war going on in their body, you do. There’s nothing wrong with pacing yourself and taking care of your body. When you need to take a break, take a break.

  • Find motivation or inspiration to get you through the day.

When you are exhausted and hurting and you feel like you just need to give up, find motivation to keep you going. Find something or someone to inspire you. It could be your mom, a friend, a Quote, or a video; whatever you find that inspires you, let that motivation drive you. Don’t give up, and keep pushing forward. You’ve got this. ♡

We Bought a House!

I’m sorry I’ve MIA lately when it comes to writing. I’ve been really busy and took some time to take care of my health, and undergo new treatments. I do have some incredible news; after being sick for 3 years and dating my boyfriend for a year and a half, my amazing boyfriend and I mustered up the courage to buy a home.

It was a long and stressful process, and with being ill, I had to constantly pace myself. I couldn’t have done this process without my family, my boyfriend, and his family; and its truly a dream come true to be able to live in our dream house.

We are extremely happy, and excited to see where this journey takes us. Heres to the start of a new chapter, together.💕💕

The post We Bought a House! appeared first on Life with an Illness.

An Open Letter to Lupus

Dear lupus,

You have changed my life. You turned my life, and my parents life upside down. You know, it was very hard to diagnose you. It took 2 years. That’s 24 months- 730 days- 17520 hours- 1051200 minutes- 63072000 seconds of my life spent trying to diagnose. For a while, I was in a really dark place. The darkness comes and goes, because of the trials you’ve put me through, and continue to put me through. I have been through tortuous trials to diagnose you- countless amounts of blood work, scans, hospital stays, steroids, and doctors appointments. I also had to make arduous decision to put school on hold, stop working, and quit running half marathons (which were my passion). You’ve put me through a lot, lupus. I blamed you. I blamed myself, wondering what I ever did to deserve this. You have caused so much hurt and pain in my life. There were doctors who didn’t understand what you were, so they turned me away. I have had friends and doctors who gave up on me. You tried to break me down, lupus. You took everything from me. But you know what? I am a warrior, and a survivor. I have certain friends and family who have only rallied against me. I have learned who is there for me, when I’ve needed them the most. I have a stronger bond than ever with my parents. I have discovered my passion and love for writing, which I wouldn’t have if it wasn’t for you, lupus. I am stronger, because of you. At times, I feel like you have only broken me, but you’re only making me stronger. So lupus, you may have changed my life, but if I had the chance to go back and redo my life or change experiences, I wouldn’t. You have made me into the person I am today. So, I may hate you, and hate the pain you bring me- I am also very thankful for the mindset you’ve given me, the strength I’ve developed, and the bonds I have formed with those around me. I know you will be something I will forever have to deal with, I also know there are positive attributes to having you in my life. Just know, you will never break me.

Sincerely,

This lupus warrior ♡

This post was first seen on lifewithanillness.com

What to Pack in your Bag When you Travel with a Chronic Illness

A chronic illness can change your life. It can bring a lot of baggage into your life. In order to survive a long busy day, you may need medication, or an ice bag for your joints. Traveling with a chronic illness can be extremely arduous; because you don’t want to forget anything you may be in dire need of. Here are ideas of what to pack in your bag when you travel with a chronic illness.

  • All of your medication.
  • A pillow and blanket.
  • Drinks in a cooler. *Lots of water.*
  • If available/needed compression socks/stockings.
  • Chapstick.
  • Biofreeze.
  • Clothes.
  • Ginger ale (in case you get car sick/ nauseous).
  • Snacks.
  • List of medications (in case you don’t memorize the order/times of your medications).
  • Phone and charger.
  • Essential oils. (I bring my essential oil bracelet with me when I travel.)
  • A book/kindle/word search/ magazine.
  • If available/needed weighted blanket.
  • Ice bag/ heating pad if needed. ( I use ice for my joint pain & both for my migraines.)
  • A positive attitude, and a never give up mindset. ♡

The post What to Pack in your Bag When you Travel with a Chronic Illnessappeared first on Life with an Illness.

You Have a Diagnosis, Now What?

You receive a diagnosis, which is a great thing. I know, sounds absurd that it could be considered a relieving thing to hear. For those with a chronic illness, you’ve been suffering for possibly months maybe even years. At this point you want the diagnosis. So you can work on your health to get into remission, however, receiving it can also make you feel overwhelmed. A thousand thoughts will go through your head all at once. You try to think about what the next step is for you. All you want is to get better, but sometimes you just don’t know what you need to do. Here is a list of what to do next after you get diagnosed.

  • Take a deep breath.

Now I know this seems a little obvious, however, after years of suffering, countless appointments, endless testing, and hospital stays the search is over. You can now put to rest all of the doubts people had that you were “faking” it. You now have a reason why your joints make you feel like you’re 70, when you’re actually 21. You can now put your mind at rest of feeling miserable, but the reason was unknown. You now have a name to blame the pain on. Take a deep breath, the detective work to figure out what you have is finally over.

  • Study, study, study.

I’ve learned when you are diagnosed, your mind can be all over the place. You have a lot to think about. The best thing you can do is study everything there is to know about what you’re going through. There is no such thing as knowing “too much” about your illness. The truth is, with most chronic illnesses there will be limitations, diet preferences, and learning to adjust to your new life with your diagnosis. When they give you a prescription, it is in your best interest to study your medication. Learn the side effects, the benefits, and what to watch for incase of a reaction.

  • Find support groups or a therapist.

I know some people aren’t keen on the idea of seeing a therapist. I wasn’t, but when you have gone through agony, pain 24/7, and your life changed in an instant, it is good to talk to someone. You’re under enormous amounts of stress, and the more you keep it in, the more it will build up. It truly is okay to ask for help. They really are there to listen to you, like a friend. I have learned techniques by going to therapy, and just by talking to someone, it honestly has helped me cope with being ill. I also recently joined a POTS support group recommended by my doctor, and it was the best decision I have made during my illness journey. It is always nice to talk to a friend or love ones, but you will always have the feeling that they don’t fully understand. Support groups are amazing in the fact that, there are people going through just about the same thing you are going through. Check online to see if there is a support group for your illness locally. They understand you’re hurting and they are there for you to help each other.

  • Inform your love ones what you are going through.

I know this may seem strange, because you tell your love ones most things. I have learned that with a chronic illness you tend to hide some aspects of your life, due to not wanting them to see you struggle, bother them, or always tell them bad news. To be honest, it’s important to tell them what is going on to keep them in the loop. For example, I hid a situation where I was constantly throwing up for a while, and having migraines from my love ones because I didn’t want to bother them about my struggles. So they thought I was doing okay and would always ask to hangout, but I had to cancel and it made them think I was blowing them off. It wasn’t the case at all. When I explained what I had been going through, they absolutely understood. Its important to keep your friends and family updated, the more included they are, the more support you will have. They are there for you, and just want the best for you.

  • Don’t give up.

They are finally starting to understand what you are going through and finding some answers. I know this life we have been given is tough but you are tougher. Hang in there and show not just others, but yourself how strong you are. You will get through this, don’t stop fighting.

For those with a chronic illness, you’ve been suffering for possibly months maybe even years. Remember, I know this life we have been given is tough but you are tougher. You deserve as quality of a life as the next person. Stay strong, stay positive, and never give up.❤

*I’m not here to treat, diagnose, or go against Dr. Orders. Just here to provide support comfort and help. *

This post was first seen on lifewithanillness.com

Quote

My Journey with a Chest Port

About 3 months ago, I made a really great decision. I decided to get a chest port. I was doing an infusion for my POTS once a week, now twice a week. I have very difficult veins and on an average, I usually get poked about 4-5 times before they find a good vein. When…

via My Journey with a Chest Port — Life with an Illness

“You Don’t Look Sick”

An invisible illness is not only difficult to deal with physically but it’s also mentally. An invisible illness is defined as not immediately visible. When you’re hurting and miserable the last thing you want to hear is “well, at least you look great, you don’t look sick”. Here is everything you need to know as…

via “You don’t look sick” — Life with an Illness

Tips for Going Gluten Free

So, you’ve just heard you have celiacs disease, or a gluten sensitivity. When you are told to cut out gluten it can become extremely overwhelming. You look in your cabinet and literally everything seems to have wheat in it. So, what do you do next? Here are tips for going gluten free. If you cut…

via Tips for going Gluten Free — Life with an Illness

My 2 Year Anniversary of Being Chronically Ill

My journey officially began 2 years ago. Wow, it’s truly insane to think I’ve been chronically ill for that long. It’s strange to think after countless amounts of tests, Doctors appointments, and trials of treatment; I have been going through this for 2 years. I have experienced more in 2 years, than some people go…

via My 2 Year Anniversary of Being Chronically Ill — Life with an Illness

Having to Drive Out of State to a Clinic for Treatment

Having a chronic illness, or a rare illness can be stressful. Not every doctor has heard of all the different types of illnesses, let alone knows how to treat them. In most cases, for instance, in my case I have to drive out of state to a Clinic for treatment. Unfortunately, going to an out…

via Having to Drive Out of State to a Clinic for Treatment — Life with an Illness

Mystery Blogger Award Nomination

A hugeeeeee thank you to Tasha for nominating me for the mystery blogger award! My heart is so happy to be nominated! Please take a second to check out her blog! I always enjoy reading her inspiring and absolutely amazing posts, and you will too! Go and check out Tasha M.’s blog Painwarriorcode! Well, let’s…

via Mystery Blogger Award Nomination — Life with an Illness

What I Blog About

I had the pleasure to be featured on -what you blog about. Thank you so much for asking me to share my story on your blog! Please make sure you click on his link below! Life with an illness blog My blog is about sharing my journey with others of having several chronic illnesses. I…

via What I Blog About — Life with an Illness

How a Chronic Illness Forces you to Grow up too Quickly

A chronic illness brings darkness to your life. It brings a cloud of sorrow over you, and everyone around you. A Chronic illness changes your life. You have to learn how to shift your life, to fit this troubling illness into your schedule. Here’s how a chronic illness forces you to grow up too early.…

via How a Chronic Illness Forces you to Grow up too Quickly — Life with an Illness

Grieving with a Chronic Illness

With a chronic illness, there is no cure. It is all about treating the symptoms and learning to live life with it. It’s like an enemy you can’t get rid of. Its hard to cope with at times. For me, I was working, in college, and training for a half marathon, and one day it…

via Grieving with a Chronic Illness — Life with an Illness

What’s in my Infusion Bag?

Infusions are used for several different illnesses.When your doctor tells you that, you will now be receiving infusions, it tends to make you feel very overwhelmed. There are also several different types of infusions. Infusions can also range in how long they will take. I had to get an IVIG infusion for lupus, and now…

via What’s in my Infusion Bag? — Life with an Illness

Calling Those with a Chronic Illness Lazy

Having a chronic illness, is honestly brutal. We are always faced with hard trials, and dealing with intense pain. It’s like constantly living in a nightmare, that you can’t wake up from. It’s extremely hurtful, and a huge letdown for someone to call those with a chronic illness lazy. Unfortunately, it’s common to hear. A…

via Calling Those with a Chronic Illness Lazy — Life with an Illness

Easy Ways to Organize your Medication

With having several chronic illnesses, my medication list is extrmely long. It can often become overwhelming looking at my list and trying to organize it. It’s also very easy to forget I took a pill, or take a pill and forget I took it. Here are easy ways to organize your medication. Use a pill…

via Easy Ways to Organize Your Medication — Life with an Illness

Things a Person with an Illness doesn’t want to Hear

With a life changing illness comes an emotional rollercoaster. Often illnesses are accompanied with depression or anxiety. With emotional health and physical health you will have your good days, your bad days, and your really bad days. It’s always nice to see family and friends but we all hear things that we don’t want to…

via Things a Person with an Illness doesn’t want to Hear — Life with an Illness

Mystery Blogger Award Nomination!

I’m so excited and just honored to be nominated for this award! Thank you so much for thinking of me for this award, Kate! Please make sure you check out her blogs, here! She’s a great writer and I always love reading her material and I think you will too! Mystery Blogger Award: “It’s an award for […]

via Mystery Blogger Award Nomination #2! — Life with an Illness

Tips for a Better Sleep with Pain Insomnia

With a chronic illness, comes joint pain, body pain, and migraines. It becomes a marathon just to be able to sleep, due to the pain. It can get stressful when your body craves sleep, however, your body won’t let you catch some Z’s. With a chronic illness, your body needs the time to repair and […]

via Tips for a Better Sleep with Pain Insomnia  — Life with an Illness

An Open Letter to the Doctor who Gave up on Me

Dear Doctor, Before I start, I want you to know I’m not even mad. You’re not the first or probably the last to turn over my case. The moment that you gave me the pity look, and said “you will never get better, you will have a feeding tube the rest of your life, and […]

via An Open Letter to the Doctor Who Gave up on Me — Life with an Illness

Survivors Blog Here Celebrates the Joining of Three New Contributors

Come celebrate with Survivors Blog Here, three new Contributors have joined the Community. Here’s a snap shot: Alexandra from Journey into A, Brian from Owning It Log and Mackenzie from Living with an Illness.

Stop in to say hello and read their current post, each have personal sites, no doubt you’ll want to follow them.

Alexandra’s at http://www.JourneyToA@wordpress.com. I hope to bring other’s along with me on my journey as well as help and inspire. A large theme is dealing with major depression and general anxiety disorder. I hope you enjoy and stay along for the journey!

Brian at http://www.owningitlog@wordpress.com is the core of strength and inspiration. He offers great wisdom and honestly from past experiences with an open heart. He is a Survivor to the core.

Mackenzie at http://www.LivingWithAnIllness@wordpress.com. Her profile shares a snap shot of her get-it-done-life-is-good-attitude. She was diagnosed with Auto-Immune Diseases Scleroderma, Celiac Disesase, Fibromyalgia, EDS and POTS.

I include this video for others to see the strength it takes everyday to survive. Surviving is not a one day task, they are life long challenges.

To Alexandra, Brian, Mackenzie WELCOME to Survivors Blog Here.  xo M

 

Easy Christmas Wreath Suitable for the Chronically Ill

This easy Santa wreath is the perfect wreath for everyone, however, it’s more suitable for the chronically ill. Having several chronic illnesses, my hands become numb after moving my hands for a long period of time. I also have extreme fatigue that severely limits me. This is a craft to get you into the Christmas […]

via Easy Christmas Wreath Suitable for the Chronically Ill — Life with an Illness

There’s a lot to be Thankful for in this World

I have some exciting news! I did a special guest post! Thank you Anindya for giving me the honor of being a guest on your blog! Please check out his blog! Here is the post I wrote on the website! via There’s a lot to be Thankful for in this World – Guest Post by […]

via There’s a lot to be Thankful for in this World — Life with an Illness

My Life Outside my Illness

I started my website about 4 months ago. The reason why I started it, was to help people who are going through chronic illnesses and spread awareness to those who aren’t. I have also learned that my illness doesn’t define who I am as a person. I thought I would share with all of you […]

via My Life Outside my Illness — Life with an Illness