The list is quite long and I have no doubt a few are missing. Get on board and give a shout-out for the issues closest to your heart. Children’s Grief Awareness Month COPD (Chronic Obstructive Pulmonary Disease) Awareness MonthDiabetic Eye Disease Awareness Month Eye Donation MonthGluten-Free Diet Awareness MonthHome Care & Hospice Month Long-Term Care […]November Awareness Days —
I’m excited to introduce you to Lin Health. They are a Pain Management platform like no other. This is not your average app, Lin Health offers you one-on-one support with a trained Health Coach who you talk with on a regular basis. She is intimately familiar with your health and medical background thru their support […]Introducing Lin Health, A New Way Forward In Pain Management —
This month’s August Chronic Illness Writing Prompts by A Chronic Voice are Wandering, Catching, Compartmentalizing, Regenerating, and Visiting. I chose three this month, Regenerating, Wandering, and Compartmentaling to write about. You will see Regenerating is where I feel the most passion. I’m feeling so regenerated in life and my future. I have made a plan […]August Chonic Illness Writing Prompts —
I’m so happy to share that Brad Gillespie has joined Survivors Blog Here. He embodies everything we stand for, adversity, strength, and moving forward with his life. Brad has been diagnosed with Adrenomyeloneuropathy (AMN).
The cliff note version of the illness is: Adrenomyeloneuropathy (AMN) is a form of X-linked adrenoleukodystrophy. AMN patients generally have spinal cord dysfunction, which leads to the initial symptoms that include difficulties in walking or a change in the walking pattern. The average age at which symptoms first appear is 28, but onset can occur anywhere from the second to the fifth decades of life.
Instead of retreating, Brad found himself a single father of three children and had to forge ahead. Now he is sharing his story with others who find themselves in similar situations or who can relate to his circumstances and the trauma he’s experienced.
I have no doubt you will enjoy posts, he is informative with a touch of wit.
Please join me in welcoming Brad to the group, be sure to drop him a line a welcome him aboard.
This is from Brad’s Contributor page, I thought his information would add value to this post.
I am just a guy with adrenomyeloneuropathy (AMN). While it can get nasty in some cases, I am one of the luckier ones.
I cannot walk, but my spirit and imagination are still working, as best as I can tell.
I look forward to getting to know folks in this community, tells some tales (mostly truthful), and with any luck, pick up some wisdom.
Have the loveliest day, folks.
Please welcome Brad to Survivors Blog Here! Be sure to check out his website and future post.
Photo by Pixabay on Pexels.com This is a popular post from years gone by that ties in perfectly with Lyme Awareness Month. The post has been added to over time and will no doubt repeat some things. Try to look at it as segments. Just like the span or segment between the last entry and […]May Is Lyme Disease Awareness Month, BE AWARE! —
A few weeks ago I participated in a collaborative post for Fibro Directory and I wanted to share the complete post. I’ve also included some additional posts from other great bloggers who posted their Fibromyalgia tips. What is Fibromyalgia? It’s a difficult question and even more difficult to diagnose. If you feel you have Fibromyalgia […]Today Is Fibromyalgia Awareness Day —
I asked Aila Health to provide an introduction about their service offerings for my autoimmune disease and other chronic illness readers. I found their concept interesting and wanted to share it with you. The idea of tapping into a community of like-minded people is interesting and finding a place that offers one on one coaching […]Introducing Aila Health, Precision Health For Your Chronic Illness Needs —
Despite having Chronic Lyme Disease, Fibromyalgia, Hypogammaglobulinemia, and Dementia, I’ve been relatively healthy for the past six months. I count my blessings and chalk it up to some big lifestyle changes. I believe self-care is the things we do every day to stay healthy, not just the special moments we spend taking care of ourselves. […]Every Day Health Hacks —
WaveLife is now Vital Field with a new mission and innovative new products. I had the opportunity to test and review the No Pain Energy Cell earlier in the year with great success. I have heard from many of you that you purchased the No Pain Cell and also found pain relief. You will be […]Vital Field Former WaveLife *New Mission New Products —
WAVELIFE Dear Friend, The secret to successful and permanent chronic pain management comes from understanding and dealing with the human condition both from a physiological and emotional perspective. Therapists in Switzerland, Austria, and Germany who have used professional Vital Field techniques for chronic conditions for decades stress the importance of combining sound lifestyle adjustments with […]The 360º Journey To Health & Painlessness —
I’m excited to let you know next month starts Pain Awareness Month. Over the past couple of years, you have seen posts from me for the U.S. Pain Foundation. I’m a Texas Ambassador and do advocacy work for them. While I haven’t been able to physically support my advocacy efforts, I do share important […]September Is Pain Awareness Month —
I’ve been using the Redeem Therapeutics Spray 750mg Hemp Extract in the mint flavor for close to a year now. I love the flavor and consistency of the spray. I’ve tried oils and dislike the residue left behind. The spray does not leave any oily residue and has a light mint flavor. The original flavor […]Review of Redeem Therapeutics Full-Spectrum Organic Hemp CBD Products —
Interestingly I’ve taken Ketamine for Pain Management but not for my Bipolar Disorder. When I spoke with my doctor about years ago he said that the percentage of people with my level of depression experiencing high results was low. The key to remember is everyone is different. The treatment is nothing like Electro Convulsive Therapy. […]IV Ketamine for Adults With MDD or Bipolar Disorder: Safety and Tolerability —
Pain Week is a publication specifically for Pain Doctors, one I haven’t heard of before. This mini article and Podcast shine a light on a topic those who suffer from chronic pain already know. Pain medication is not being prescribed when needed and specialized pain care is dwelling. This Podcast is very interesting, we now […]I’m Not a Doctor, But I Play One in DC —
My journey continues as I look for reasons for the ongoing hair loss and what can be done to slow the process down. Here are the steps taken since my last post. I started taking a Bioton supplement on July 26th after reading the number of positive reviews on Amazon. People mentioned stronger nails and […]Let’s Talk About Hair Loss *Natural Remedies —
Vacuumed kitchen and dining room. Mopped kitchen. Applied cuticle cream twice. Vacuumed part of the living room, still need to clean the floor. Potted two house plants. Enjoyed a candle for a few minutes. Emptied dishwasher. Woke up 4:00 A.M. with the puppy. Haven’t taken a nap. I cleaned up but no shower, those […]Fibromyalgia Thoughts #4 Living Without A Flair —
I’m working on a post about hair loss after this shocking discovery from washing my hair yesterday. I now have medium length hair and it was brushed before my shower, this amount of hair loss doesn’t make sense. I’ve known about my hair loss for some time but yesterday’s discovery was a slap in the […]Does This Look Familiar To You? —
Dissociative Identity Disorder is a childhood-onset trauma symptom induced by an overwhelming confrontation with human evil before the brain can create a functional mind. When my psychiatrist diagnosed DID in 2009, I was already too symptomatic to work. I had no interest in social media, but I compulsively staged virtual photoshoots in Second Life and […]The Man Who Forgot He Doesn’t Exist — Art by Rob Goldstein
The post Midweek Motivation appeared first on Life with an Illness.
A chronic illness will drag you down. At times, you feel like a walking zombie. You have to force yourself to get out of bed and accomplish a task. It can be extremely difficult to run on no energy. Pushing through when you have no energy left is the only choice you have.
- Getting through a day when you have no energy
When you have zero energy your body can feel like it’s completely holding you back. It’s almost impossible to get anything accomplished. What I like to do is the spoon theory. The spoon theory is a way to save energy. Each spoon represents a unit of energy and you can only use those amount of spoons for each day. If you run out, you can borrow one from another day. This really helps when it comes saving your energy and not over working yourself.
- Don’t be afraid to take breaks
Don’t forget to take little breaks throughout the day. This will help you from not over doing it. I was afraid to take breaks in front of people for the longest time, because I tried to keep up with them. I’ve learned I cant keep up with everyone, and that’s okay. They don’t have a constant war going on in their body, you do. There’s nothing wrong with pacing yourself and taking care of your body. When you need to take a break, take a break.
- Find motivation or inspiration to get you through the day.
When you are exhausted and hurting and you feel like you just need to give up, find motivation to keep you going. Find something or someone to inspire you. It could be your mom, a friend, a Quote, or a video; whatever you find that inspires you, let that motivation drive you. Don’t give up, and keep pushing forward. You’ve got this. ♡
I’ve been told I’m a chronic pain in the ass after all, it’s easy to destroy a child in an adult’s body with past-tense words and now in the time I’m meant to be at my strongest chronic has visited me and stayed a long while on a good day I think; This will not […]
I’m sorry I’ve MIA lately when it comes to writing. I’ve been really busy and took some time to take care of my health, and undergo new treatments. I do have some incredible news; after being sick for 3 years and dating my boyfriend for a year and a half, my amazing boyfriend and I mustered up the courage to buy a home.
It was a long and stressful process, and with being ill, I had to constantly pace myself. I couldn’t have done this process without my family, my boyfriend, and his family; and its truly a dream come true to be able to live in our dream house.
We are extremely happy, and excited to see where this journey takes us. Heres to the start of a new chapter, together.💕💕
Life certainly hasn’t turned out the way I intended, to say the least. And in the beginning, when I was sickest, I was angry and full of pain and disappointment over getting sick. I had a difficult time seeing through the haze of loss and resentment to realize that I still had choices left in […]
A chronic illness will change the way you live life,
It can make you feel like you’ve been stabbed in every joint by a knife.
It can change how you view things, even your mindset,
You tend to feel like you’re forever trapped in a drowning net.
Your relationships will start to change,
Your life just feels like it has been rearranged.
A chronic illness can change a lot,
But don’t ever allow it to define who you are, no matter what baggage this illness has brought.
You are still you, just stronger,
This illness will not have a hold on you, not any longer. ♡
This post was first seen on lifewithanillness.com
I decided to get into the holiday fun with this adorable wreath! Having several chronic illnesses and POTS, I always have extreme fatigue and my hands become numb after a while. There are a lot of things I am not able to complete but I decided to get involved in the Halloween spirit and make a craft! Remember even though life can be hard, and you’re hurting it’s important to still have fun, and do things to get your mind off of things. I loved this craft and it makes you feel good to accomplish it! Anyone can do it however, for those with a chronic illness and get tired easily this is perfect for you! It was inexpensive, I did it on my couch, and it only took an hour! It didn’t overly tire me out and didn’t make my hands go very numb. I did take several breaks, so the break option is completely up to you! It is an easy project to have a lot of stopping points, therefore, it allows you to take breaks whenever. I bought all of the products at Hobby Lobby, they have a large and fun supply of Halloween options! Lets get started!
12 Inch round Styrofoam Wreath
Black 6″ Glitter Tulle
Orange 6″ Glitter Tulle
A Little Halloween Sign to go on your Wreath (optional)
Hot Glue Gun * Only if you decide to put a sign on it (Optional)
- I find it easier to cut a lot of strips first, cut an arm length strip. Fold the strip in half and put the folded tulle under the wreath.
- Grab both ends, so the tulle is wrapped around the Styrofoam. Grabbed the two ends and pull through the loop, and pull tightly.
- Make sure the knot is on the outside portion of wreath. The loose end of the tulle needs to stick straight out to provide the tutu wreath look. Where the knot is, make sure you fan out some of the tulle to cover up the white wreath.
- Repeat steps 1. and 2 until you fully cover the wreath. Fluff out tulle. * NOTE* If there are some tulle that is longer than others you can always trim the longer piece.
- Optional* If you want to put a sign on it, hot glue were you want the sign and stick it on there. Make sure it is very secure on there.
That’s it! Super simple and also very cute! It’s not super tiring and it gives you something to be proud of! Leave me a comment if you’ve done any Halloween crafts or tell me what your favorite Halloween activity is! I can’t wait to hear from you! Good luck and Enjoy!
The post Easy Halloween Wreath Suitable for Chronically Ill Peopleappeared first on Life with an Illness.
Having POTS has really changed my life. I haven’t been able to walk without assistance for over a year, due to being extremely dizzy and uncontrollable chronic migraines. I also pass out a lot. My family and I made the executive decision to get a puppy and get him trained to be my service dog! The service dog will be able to assist me in public, and also be trained for when I’m home alone to be able to help me when I pass out; or incase of an emergency.
To be honest, I was nervous to even think about getting a service dog. I was afraid when I take him out in public people would judge me or stare. I realized that if a service dog will give me some independence, and be there to help me when needed- then I don’t care what people will think. I decided I need to do what’s best for me. I am home alone a lot, because I work from home. Due to passing out a lot and being dizzy, my family worry about me a lot when I’m alone and also try not to leave me alone for very long. A service dog will be able to help me in case of an emergency and also will be there when I need stability when I walk. I learned instead of caring what others think, I need to get out and live my life and not base my life on others opinions.
After searching for weeks for the perfect dog for me, I found one- a golden retriever. His name is Chance, and my boyfriend and I fell in love with him instantly!
He is super sweet, and we developed a bond right then and there.
When we first brought him home, we felt like we were bringing home a newborn home from the hospital. We
were all nervous on how it would go, and how he would fit in with our other dog and cat. It actually went better than I ever could have imagined.
Chance and my cat- Joey are now forever friends, and Max leads Chance like a big brother around the house.
He is a very playful puppy, and he loves to cuddle.
We put him in puppy class, so he can associate with other puppies and learn basic commands. He is a super quick learner, but he gets distracted easily. He has graduated puppy class and just started the intermediate class.
Chance is teething and definitely loves to chew up shoes! Fingers crossed that habit breaks soon! He tends be become a little crazy, but we can all use a little crazy in our lives. It has really been fun watching him grow up, and develop a personality. I can’t wait for our bond to become even closer as he grows.
This has been an unforgettable journey so far and I look forward to him being able to help me; so I can become more independent, and can go even just to the grocery store by myself. Chance has been the missing piece in my heart I never knew I was missing. My boyfriend and I have truly become a little family with our puppy and its been heart warming. I look forward to sharing my journey with you all.
This post was first seen on KO
A chronic illness can change your life. It can bring a lot of baggage into your life. In order to survive a long busy day, you may need medication, or an ice bag for your joints. Traveling with a chronic illness can be extremely arduous; because you don’t want to forget anything you may be in dire need of. Here are ideas of what to pack in your bag when you travel with a chronic illness.
- All of your medication.
- A pillow and blanket.
- Drinks in a cooler. *Lots of water.*
- If available/needed compression socks/stockings.
- Ginger ale (in case you get car sick/ nauseous).
- List of medications (in case you don’t memorize the order/times of your medications).
- Phone and charger.
- Essential oils. (I bring my essential oil bracelet with me when I travel.)
- A book/kindle/word search/ magazine.
- If available/needed weighted blanket.
- Ice bag/ heating pad if needed. ( I use ice for my joint pain & both for my migraines.)
- A positive attitude, and a never give up mindset. ♡
The post What to Pack in your Bag When you Travel with a Chronic Illnessappeared first on Life with an Illness.
This post was first seen on lifewithanillness.com
You receive a diagnosis, which is a great thing. I know, sounds absurd that it could be considered a relieving thing to hear. For those with a chronic illness, you’ve been suffering for possibly months maybe even years. At this point you want the diagnosis. So you can work on your health to get into remission, however, receiving it can also make you feel overwhelmed. A thousand thoughts will go through your head all at once. You try to think about what the next step is for you. All you want is to get better, but sometimes you just don’t know what you need to do. Here is a list of what to do next after you get diagnosed.
- Take a deep breath.
Now I know this seems a little obvious, however, after years of suffering, countless appointments, endless testing, and hospital stays the search is over. You can now put to rest all of the doubts people had that you were “faking” it. You now have a reason why your joints make you feel like you’re 70, when you’re actually 21. You can now put your mind at rest of feeling miserable, but the reason was unknown. You now have a name to blame the pain on. Take a deep breath, the detective work to figure out what you have is finally over.
- Study, study, study.
I’ve learned when you are diagnosed, your mind can be all over the place. You have a lot to think about. The best thing you can do is study everything there is to know about what you’re going through. There is no such thing as knowing “too much” about your illness. The truth is, with most chronic illnesses there will be limitations, diet preferences, and learning to adjust to your new life with your diagnosis. When they give you a prescription, it is in your best interest to study your medication. Learn the side effects, the benefits, and what to watch for incase of a reaction.
- Find support groups or a therapist.
I know some people aren’t keen on the idea of seeing a therapist. I wasn’t, but when you have gone through agony, pain 24/7, and your life changed in an instant, it is good to talk to someone. You’re under enormous amounts of stress, and the more you keep it in, the more it will build up. It truly is okay to ask for help. They really are there to listen to you, like a friend. I have learned techniques by going to therapy, and just by talking to someone, it honestly has helped me cope with being ill. I also recently joined a POTS support group recommended by my doctor, and it was the best decision I have made during my illness journey. It is always nice to talk to a friend or love ones, but you will always have the feeling that they don’t fully understand. Support groups are amazing in the fact that, there are people going through just about the same thing you are going through. Check online to see if there is a support group for your illness locally. They understand you’re hurting and they are there for you to help each other.
- Inform your love ones what you are going through.
I know this may seem strange, because you tell your love ones most things. I have learned that with a chronic illness you tend to hide some aspects of your life, due to not wanting them to see you struggle, bother them, or always tell them bad news. To be honest, it’s important to tell them what is going on to keep them in the loop. For example, I hid a situation where I was constantly throwing up for a while, and having migraines from my love ones because I didn’t want to bother them about my struggles. So they thought I was doing okay and would always ask to hangout, but I had to cancel and it made them think I was blowing them off. It wasn’t the case at all. When I explained what I had been going through, they absolutely understood. Its important to keep your friends and family updated, the more included they are, the more support you will have. They are there for you, and just want the best for you.
- Don’t give up.
They are finally starting to understand what you are going through and finding some answers. I know this life we have been given is tough but you are tougher. Hang in there and show not just others, but yourself how strong you are. You will get through this, don’t stop fighting.
For those with a chronic illness, you’ve been suffering for possibly months maybe even years. Remember, I know this life we have been given is tough but you are tougher. You deserve as quality of a life as the next person. Stay strong, stay positive, and never give up.❤
*I’m not here to treat, diagnose, or go against Dr. Orders. Just here to provide support comfort and help. *
This post was first seen on lifewithanillness.com
Pain has a way to rope and lasso you in, All you want to do is scream and escape your skin. In this tortuous and arduous situation- life has basically come to a hault, Never believe that this obstacle has ever been your fault. For, you will overcome this horrifying pain, Utilize the strength your…
Having several chronic illnesses, I’ve learned that with a positive outlook even during the hardest times you can still find the good in situations. Everyone endures a difficult trial, it’s the way you look at it, that determines how you will get through it. There are a million negatives of having a chronic illness, however,…
About 3 months ago, I made a really great decision. I decided to get a chest port. I was doing an infusion for my POTS once a week, now twice a week. I have very difficult veins and on an average, I usually get poked about 4-5 times before they find a good vein. When…
A chronic illness is life changing. It changes your life totally, and completely. It changes you. The pain you have to endure, and the constant pressure of knowing you are sick, you are different, and you have restrictions is heartbreaking. A chronic illness can really rock your world. The hard part is pushing through, when…
The moment you hear your diagnosis for the first time, your breath that you lost, is something you try to find. You finally figured out why you’ve been suffering for so long, you try not to react, you just strive to stay strong. Tears unwillingly welt up in your eyes, all you want is a…
An invisible illness is not only difficult to deal with physically but it’s also mentally. An invisible illness is defined as not immediately visible. When you’re hurting and miserable the last thing you want to hear is “well, at least you look great, you don’t look sick”. Here is everything you need to know as…
So, you’ve just heard you have celiacs disease, or a gluten sensitivity. When you are told to cut out gluten it can become extremely overwhelming. You look in your cabinet and literally everything seems to have wheat in it. So, what do you do next? Here are tips for going gluten free. If you cut…
My journey officially began 2 years ago. Wow, it’s truly insane to think I’ve been chronically ill for that long. It’s strange to think after countless amounts of tests, Doctors appointments, and trials of treatment; I have been going through this for 2 years. I have experienced more in 2 years, than some people go…
Having a chronic illness, or a rare illness can be stressful. Not every doctor has heard of all the different types of illnesses, let alone knows how to treat them. In most cases, for instance, in my case I have to drive out of state to a Clinic for treatment. Unfortunately, going to an out…
Lupus is an autoimmune disease, where your immune system attacks your own tissue and organs, mistakenly. According to Womenshealth.gov, 9 out of 10 adults with lupus are women. Unfortunately, there’s no cure, but it can be managed by a doctor and medication. Lupus causes inflammation in the joints, and organs. It also comes with a…
A hugeeeeee thank you to Tasha for nominating me for the mystery blogger award! My heart is so happy to be nominated! Please take a second to check out her blog! I always enjoy reading her inspiring and absolutely amazing posts, and you will too! Go and check out Tasha M.’s blog Painwarriorcode! Well, let’s…
I had the pleasure to be featured on -what you blog about. Thank you so much for asking me to share my story on your blog! Please make sure you click on his link below! Life with an illness blog My blog is about sharing my journey with others of having several chronic illnesses. I…
A chronic illness brings darkness to your life. It brings a cloud of sorrow over you, and everyone around you. A Chronic illness changes your life. You have to learn how to shift your life, to fit this troubling illness into your schedule. Here’s how a chronic illness forces you to grow up too early.…
With a chronic illness, there is no cure. It is all about treating the symptoms and learning to live life with it. It’s like an enemy you can’t get rid of. Its hard to cope with at times. For me, I was working, in college, and training for a half marathon, and one day it…
《C》Pic & Quote by lifewithanillness.comThe post Midweek Motivation appeared first on Life with an Illness.
Your world feels like it is crumbling at your feet, All you want to do is climb in bed forever, and hide under your sheet. You know you won’t ever give up, But you just pray and wish the pain will just let up. You have a little piece of light in your heart,that the…
Unfortunately, most people have experienced the excruciating pain of a migraine. The agonizing feeling when your head throbs, and pulses. Light and noise can cause a piercing pain. The pain is so violent that you feel sick to your stomach, and maybe even throw up. It’s absolutely horrendous, and terrifying. Due to the excessive amount…
Infusions are used for several different illnesses.When your doctor tells you that, you will now be receiving infusions, it tends to make you feel very overwhelmed. There are also several different types of infusions. Infusions can also range in how long they will take. I had to get an IVIG infusion for lupus, and now…
Having a chronic illness, is honestly brutal. We are always faced with hard trials, and dealing with intense pain. It’s like constantly living in a nightmare, that you can’t wake up from. It’s extremely hurtful, and a huge letdown for someone to call those with a chronic illness lazy. Unfortunately, it’s common to hear. A…