A Chronic Illness Doesn’t Define You

A chronic illness will change the way you live life,

It can make you feel like you’ve been stabbed in every joint by a knife.

It can change how you view things, even your mindset,

You tend to feel like you’re forever trapped in a drowning net.

Your relationships will start to change,

Your life just feels like it has been rearranged.

A chronic illness can change a lot,

But don’t ever allow it to define who you are, no matter what baggage this illness has brought.

You are still you, just stronger,

This illness will not have a hold on you, not any longer. ♡

This post was first seen on lifewithanillness.com

An Open Letter to Lupus

Dear lupus,

You have changed my life. You turned my life, and my parents life upside down. You know, it was very hard to diagnose you. It took 2 years. That’s 24 months- 730 days- 17520 hours- 1051200 minutes- 63072000 seconds of my life spent trying to diagnose. For a while, I was in a really dark place. The darkness comes and goes, because of the trials you’ve put me through, and continue to put me through. I have been through tortuous trials to diagnose you- countless amounts of blood work, scans, hospital stays, steroids, and doctors appointments. I also had to make arduous decision to put school on hold, stop working, and quit running half marathons (which were my passion). You’ve put me through a lot, lupus. I blamed you. I blamed myself, wondering what I ever did to deserve this. You have caused so much hurt and pain in my life. There were doctors who didn’t understand what you were, so they turned me away. I have had friends and doctors who gave up on me. You tried to break me down, lupus. You took everything from me. But you know what? I am a warrior, and a survivor. I have certain friends and family who have only rallied against me. I have learned who is there for me, when I’ve needed them the most. I have a stronger bond than ever with my parents. I have discovered my passion and love for writing, which I wouldn’t have if it wasn’t for you, lupus. I am stronger, because of you. At times, I feel like you have only broken me, but you’re only making me stronger. So lupus, you may have changed my life, but if I had the chance to go back and redo my life or change experiences, I wouldn’t. You have made me into the person I am today. So, I may hate you, and hate the pain you bring me- I am also very thankful for the mindset you’ve given me, the strength I’ve developed, and the bonds I have formed with those around me. I know you will be something I will forever have to deal with, I also know there are positive attributes to having you in my life. Just know, you will never break me.

Sincerely,

This lupus warrior ♡

This post was first seen on lifewithanillness.com

Mystery Blog Award Nomination!

Im so excited to be nominated for the Mystery Blogger award! I want to thank Kaitlin, for nominating me! I really appreciate you for considering me! I love everything this award represents, and I am so thankful to be nominated! Please make sure you check out her blog here! I love reading her posts and you will too! Now, let’s get started!

*This award is “an award for amazing bloggers with indigenous posts. Their blog not only captivates; it inspires and motivates. They are one of the best out there, and they deserve every recognition they get. This award is also for bloggers who find fun and inspiration in blogging and they do it with so much love and passion.”*

HERE ARE THE RULES:

• Thank whoever nominated you and include a link to their blog

• Tell your readers three things about yourself

• Nominate bloggers you feel deserve the award

• Answer the questions from the person who nominated you

• Ask your nominees 5 questions of your choice, with one weird or funny one

• Notify your nominees by commenting on their blog


3 THINGS ABOUT ME

  1. I just got a puppy and I’m in love with him! He’s a 4 month old golden retriever, and will one day become my service dog. He’s a very happy and lovable furbaby! I can’t wait to share my journey with him, to y’all!
  2. I am allergic to seriously everything! I am gluten free, dairy free, and soy free! Dont ever let me cook dinner for you, unless you like very healthy food!
  3. I love ice cream! I could seriously eat ice cream for every meal and never get tired of it!

QUESTIONS FROM KAITLIN:

  • Why did you decide to start your blog?
  • I started my blog because I became chronically ill. I got in a very very dark place, and I knew I could either let my illness take over me, or I could use my illnesses as a tool to help others. All I ever wanted to do was share my journey to help others in my situation, share tips, let them know they aren’t alone, and also spread love and positivity.
  • What is your favorite breakfast food?
  • Pancakes and syrup! Yum!
  • Who motivates you? Or is your inspiration?
  • My mom is my biggest inspiration. She is the strongest human I know, and I’m so lucky to have such a positive and inspirational woman to look up to.
  • Do you have a favorite book or movie?
  • My favorite movie of all time is Sweet Home Alabama, and my favorite book is Fault in our Stars!
  • If you could travel anywhere in the world, where would you go? And why?
  • Australia! I have always wanted to go there! It looks absolutely beautiful, and I really want to see a kangaroo!
  • My questions for my nominees:

  • Who is one person in your life you look up to?
  • Do you like cookies or cake better?
  • What made you decide to start a blog?
  • If you were given 1 million dollars, how would you spend it?
  • What is one place you want to travel to?

My nominees

Thank you again for nominating me, Kaitlin! To my nominees, I cant wait to read your answers! I hope everyone has a fabulous day! Never give up, and always stay positive!♡

This post was first seen on lifewithanillness.com

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~PAIN~

Pain has a way to rope and lasso you in, All you want to do is scream and escape your skin. In this tortuous and arduous situation- life has basically come to a hault, Never believe that this obstacle has ever been your fault. For, you will overcome this horrifying pain, Utilize the strength your…

via ~PAIN~ — Life with an Illness

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The Positive Side of Having a Chronic Illness

Having several chronic illnesses, I’ve learned that with a positive outlook even during the hardest times you can still find the good in situations. Everyone endures a difficult trial, it’s the way you look at it, that determines how you will get through it. There are a million negatives of having a chronic illness, however,…

via The Positive Side of Having a Chronic Illness  — Life with an Illness

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My Journey with a Chest Port

About 3 months ago, I made a really great decision. I decided to get a chest port. I was doing an infusion for my POTS once a week, now twice a week. I have very difficult veins and on an average, I usually get poked about 4-5 times before they find a good vein. When…

via My Journey with a Chest Port — Life with an Illness

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Pushing Through when your Chronic Illness is Pulling you Down

A chronic illness is life changing. It changes your life totally, and completely. It changes you. The pain you have to endure, and the constant pressure of knowing you are sick, you are different, and you have restrictions is heartbreaking. A chronic illness can really rock your world. The hard part is pushing through, when…

via Pushing Through when your Chronic Illness is Pulling you Down — Life with an Illness

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The Diagnosis- Poem

The moment you hear your diagnosis for the first time, your breath that you lost, is something you try to find. You finally figured out why you’ve been suffering for so long, you try not to react, you just strive to stay strong. Tears unwillingly welt up in your eyes, all you want is a…

via The Diagnosis- Poem Style — Life with an Illness

“You Don’t Look Sick”

An invisible illness is not only difficult to deal with physically but it’s also mentally. An invisible illness is defined as not immediately visible. When you’re hurting and miserable the last thing you want to hear is “well, at least you look great, you don’t look sick”. Here is everything you need to know as…

via “You don’t look sick” — Life with an Illness

Tips for Going Gluten Free

So, you’ve just heard you have celiacs disease, or a gluten sensitivity. When you are told to cut out gluten it can become extremely overwhelming. You look in your cabinet and literally everything seems to have wheat in it. So, what do you do next? Here are tips for going gluten free. If you cut…

via Tips for going Gluten Free — Life with an Illness

My 2 Year Anniversary of Being Chronically Ill

My journey officially began 2 years ago. Wow, it’s truly insane to think I’ve been chronically ill for that long. It’s strange to think after countless amounts of tests, Doctors appointments, and trials of treatment; I have been going through this for 2 years. I have experienced more in 2 years, than some people go…

via My 2 Year Anniversary of Being Chronically Ill — Life with an Illness

Having to Drive Out of State to a Clinic for Treatment

Having a chronic illness, or a rare illness can be stressful. Not every doctor has heard of all the different types of illnesses, let alone knows how to treat them. In most cases, for instance, in my case I have to drive out of state to a Clinic for treatment. Unfortunately, going to an out…

via Having to Drive Out of State to a Clinic for Treatment — Life with an Illness

All about Lupus

Lupus is an autoimmune disease, where your immune system attacks your own tissue and organs, mistakenly. According to Womenshealth.gov, 9 out of 10 adults with lupus are women. Unfortunately, there’s no cure, but it can be managed by a doctor and medication. Lupus causes inflammation in the joints, and organs. It also comes with a…

via All about Lupus — Life with an Illness

Mystery Blogger Award Nomination

A hugeeeeee thank you to Tasha for nominating me for the mystery blogger award! My heart is so happy to be nominated! Please take a second to check out her blog! I always enjoy reading her inspiring and absolutely amazing posts, and you will too! Go and check out Tasha M.’s blog Painwarriorcode! Well, let’s…

via Mystery Blogger Award Nomination — Life with an Illness

How a Chronic Illness Forces you to Grow up too Quickly

A chronic illness brings darkness to your life. It brings a cloud of sorrow over you, and everyone around you. A Chronic illness changes your life. You have to learn how to shift your life, to fit this troubling illness into your schedule. Here’s how a chronic illness forces you to grow up too early.…

via How a Chronic Illness Forces you to Grow up too Quickly — Life with an Illness

Grieving with a Chronic Illness

With a chronic illness, there is no cure. It is all about treating the symptoms and learning to live life with it. It’s like an enemy you can’t get rid of. Its hard to cope with at times. For me, I was working, in college, and training for a half marathon, and one day it…

via Grieving with a Chronic Illness — Life with an Illness

Inner Strength- Poem

Your world feels like it is crumbling at your feet, All you want to do is climb in bed forever, and hide under your sheet. You know you won’t ever give up, But you just pray and wish the pain will just let up. You have a little piece of light in your heart,that the…

via Your Inner Strength- Poem — Life with an Illness

Never Give Up

Life will always throw trials and tribulations your way. There are times where you just want to give up, and go back to bed. It’s a lot easier to just say I’m done, I can’t do this anymore. It takes a truly strong person to pick themselves up, and continue the fight. It takes a…

via Never Give Up — Life with an Illness

What’s in my Infusion Bag?

Infusions are used for several different illnesses.When your doctor tells you that, you will now be receiving infusions, it tends to make you feel very overwhelmed. There are also several different types of infusions. Infusions can also range in how long they will take. I had to get an IVIG infusion for lupus, and now…

via What’s in my Infusion Bag? — Life with an Illness

The Power of Staying Positive

With having a chronic illness you are constantly being thrown difficult trials. Having several chronic illnesses myself, its been the hardest thing I have ever been through. Even though I struggle, I always get asked how I stay so positive and how I have a great attitude through all of this. Everyone has their bad…

via The Power of Staying Positive — Life with an Illness

Thank You for 2,000 Followers!

Wow! I am speechless!♡ I just want to take this time to thank you. Thank you, for reading. Thank you, for your support. Thank you, for helping me spread awareness, and helping others. Two years ago, I got sick. After countless amounts of tests, doctors, trips to clinics, and hospital stays I still am fighting…

via Thank You for 2,000 Followers!! — Life with an Illness

Versatile Blogger Award Nomination

I have been nominated for the versatile blogger award! It warms my heart to be nominated! A huge thank you to Rhapsody Bohème. Please make sure you check out her blog! She’s an amazing and inspiring writer with a huge heart! I have been a follower of hers for some time now, and I always…

via Versatile Blogger Award Nomination ♡ — Life with an Illness

Changes

Originally posted on Journey Into A on March 12, 2018.

I had a day all to myself recently where I could just relax and do absolutely nothing. I thought it would be a great day, but somehow I still ended up feeling anger or sadness. Before I went to sleep, I really thought about this and asked myself “what was it that got into your day to make you feel so upset? You were at home all day! There shouldn’t have been anything to upset you.” I realized that the only times I felt anger or sadness were from when I had opened my Facebook app.

So I deleted it.

Now, I just deleted the app so I still have a Facebook, but I don’t have the easy access to it like I did before. I haven’t fully deleted it because of all the photos as well as the fact that that’s how I can reach my page (to promote my blog). I haven’t been on it in about 3 weeks and it has been so nice!

I have been trying to change my way of thinking for the better the past few months and everyday, I still kept getting dragged into the same old thought patterns. It always stemmed from going on that app and seeing so much hate and anger and sadness and complaining. It was too much. If I couldn’t control their narratives, then it was time to control my own.

I didn’t have to go on it. I didn’t have to read their posts. I didn’t have to be upset from, well, bullshit anymore. I could free myself from it. I have that ability.

Read the last 221 words here.

Feeling Confident After Hair Loss

Having several chronic illnesses, I unfortunately had to cut my long hair, due to hair loss. My hair started to come out in handfuls. I was devastated to cut it, because it was my security blanket. After my haircutI felt extremely insecure once I cut it, but in the long run I’m glad I did.…

via Feeling Confident After Hair Loss — Life with an Illness